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DLG4 Announcements & News

The DLG4 SHINE Foundation board is always working on new projects and opportunities. Here are some of our latest efforts and achievements.

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DLG4 SHINE Foundation Supports Innovative Research Exploring a Potential RNA-Based Approach to Increase PSD95 Expression

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2026 Roadshow Locations

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DLG4 SHINE End-of-Year Fundraising Event

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ICD-10 Code Assignment For DLG4 SHINE

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Spreading Awareness For SHINE Syndrome on Talk Pittsburgh For Rare Disease Day 2025

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Citizen Health "Share for Rare"

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The Science of DLG4 webinar series

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FDA Patient Listening Session

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A Rebrand is happening

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