Clinical Resources For Providers
The DLG4 SHINE Foundation eagerly works with medical providers to offer resources for families impacted by DLG4-related Synaptopathy (DLG4 SHINE). If you are treating someone with DLG4 SHINE, we ask you to please connect the family to the DLG4 SHINE Foundation.
We are a global community and can provide resources & support to families affected by this rare, genetic disease. Additionally, we are supporting research and the more patients we have, the stronger we are!
-
We offer information for Newly Diagnosed families and provide an overview about DLG4 Synaptopathy.
-
Educational webinars, archived on our website, deliver valuable information for patients, clinicians and researchers.
-
Our Registry is the best way to move research forward but we need to find patients - please send your patients to us!
-
Printable resources to give to your patients about DLG4 SHINE Syndrome so they can be better informed.