Learn more about this rare disease, how it affects our families, and how we're helping to find treatment.
Donate to DLG4 SHINE
Despite being rare, our genes are clues to common neurological diseases. Our DLG4 SHINEing Stars and families have many questions about what to expect and who to go to help? DLG4 SHINE Foundation is working passionately to achieve answers. Researchers are trying to help uncover what treatment options are possible. Without your donations, DLG4 SHINEing Stars face daily challenges in normal things most take for granted like putting on your clothes or feeding themselves. They're also challenged with serious health impacts with cognitive impairment, seizures, intellectual disabilities, developmental delays, and sleep disorders. Please Join the Cause.
Online Giving
Making a DLG4 SHINE donation means you're contributing to improving the quality of life for those struggling with the day-to-day challenges of the disease. The DLG4 SHINE Foundation ensures every dollar donated is used to fund carefully vetted research projects, approved by our Scientific Advisory Board, to find and develop therapies and treatment for DLG4 Related Synaptopathy. Your contribution—in any amount—is greatly appreciated.
Your generous donations and support will help more than 200 families (and counting) impacted by this rare disease.
Other Ways To Give
In addition to online giving, there are various other ways to make contributions to the DLG4 SHINE Foundation.
CHECK
Prefer to donate by check? No problem. Make checks payable to to DLG4 SHINE Foundation and mail to:
DLG4 SHINE Foundation
P.O. Box 1273
Pleasant Grove, UT, 84062
BANK TRANSFER
Prefer to donate by bank transfer (ACH)? Please contact our Treasurer Melanie at melanie@dlg4shine.org for more information.
PAYPAL
We are a 501(c)(3) public charity listed with the PayPal Giving Fund. When you give here, PayPal covers all transaction fees, and 100% of the donation comes directly to us. Upon completion of your donation, PayPal Giving Fund will issue you a donation receipt.
SHOPRAISE
https://shopraise.com/support/590504
Whether you’re shopping for daily essentials like groceries, buying furniture for your home office, or even booking your next trip, the ShopRaise app lets you turn your everyday shopping into support for your favorite cause, all at no additional cost to you. Support the DLG4 SHINE Foundation by installing the ShopRaise app.
KROGER COMMUNITY REWARDS
More information coming soon
DONATE STOCK
For United States-based donors, donating appreciated stock to the DLG4 SHINE Foundation is a tax-wise approach to helping us find treatment for DLG4-related synaptophathy. Donors choose to make gifts to the DLG4 SHINE Foundation using long-term appreciated stocks due to the attractive tax advantages associated with such gifts.
To give shares (stocks, mutual funds, or other securities), your broker can electronically transfer a gift directly to our account. To complete an electronic transfer, please contact Treasurer Melanie at melanie@dlg4shine.org.
LEAVE A GIFT IN YOUR WILL, TRUST, OR BY BENEFICIARY DESIGNATION
To leave a gift to the SHINE Syndrome Foundation in your will, trust or by beneficiary designation, please use the following language: “I hereby give and bequeath $_________, or _____ percent of the residue of my estate to the SHINE Syndrome Foundation, Inc., a nonprofit located in Ohio and exempt from Federal taxation under Section 501(c)(3) of the Internal Revenue Code, Federal tax ID number 87-4703593.”
If you have designated a gift for the SHINE Syndrome Foundation, please let us know. We would love to have the chance to say thank you and help ensure your wishes are honored. Thank you.
EMPLOYEE MATCHING GIFTS
Check with your company to see if they match charitable donations made by employees. You could double your gift to the DLG4 SHINE Foundation.
The SHINE Syndrome Foundation is a 501(c)(3) nonprofit corporation. All donations are tax-deductible to the extent of the law. EIN# 87-4703593