"We are so proud of how far Myles has come since his diagnosis, and we are going to continue to fight for treatments. As Myles refuses to give up on everything he does, we refuse to give up on the possibilities that lie ahead."

"We knew from the time she started physical therapy at four months of age that there was something very special about Liliana"

"Very early on, we noticed that Cédric was not reaching milestones at the same pace as his peers. By 18 months old, we were able to consult a developmental therapist, a physiotherapist and a speech and language pathologist. They confirmed delays in all areas and we started therapies and a quest for a diagnosis."

"We opted for round two of genetic testing and the door opened. Everything suddenly made sense. She was diagnosed in 2019 with Shine Syndrome. "

"The struggle for severe sleep disturbance to delayed motor skills, speech and possible ADHD, we needed more support for Izac. He was approved for a few supports, but it wasn’t enough."

"Nolan is the third child in our family. He seemed like he was developing fairly normally, however, by the time he was two, there was a more noticeable difference in his language and cognition when around same-age peers." We kept hearing 'give him a few more months to develop' from physicians."

"Noah was evaluated [shortly after he turned three] and found to be significantly globally delayed though he had many splinter skills at that time which made him look quite typical in many ways. He started physical therapy, occupational therapy, speech language therapy, vision therapy and special education services. We also started our search for answers.

"The only presenting concern at birth for Harvey was intermittent strabismus, which his physician’s assumed he would grow out of overtime. By 5 months, though, we began seeing Harvey’s first specialist, the Ophthalmologist for worsening concerns over strabismus. Little did we know that this would begin our medical journey."

"He continues to show us that nothing is impossible. "