Learn more about this rare disease, how it affects our families, and how we're helping to find treatment.
Volunteer For DLG4 SHINE
Welcome! We are so glad you are interested in getting involved with the DLG4 SHINE Foundation. There are many volunteer opportunities!
We’d love to learn about your interests, strengths, and on which of the Foundation’s exciting work streams you’d like to lend a hand.
The DLG4 SHINE Foundation could not do the work it does without the dedication of parents, family members, and the broader community. You are a key part of helping us accomplish our mission to find treatments for all individuals in the world with DLG4 SHINE Syndrome.
Whether it’s joining our parent support team, helping with fundraising, getting involved with clinical research, or embarking on one of the countless other volunteer opportunities, we’d love to have you on the Team!
Please fill out our volunteer interest form and we’ll be in touch shortly with next steps!
Join Our Mission By Becoming A Volunteer
DLG4 SHINE Step-by Step Guide
We've created this step-by-step guide to help newly diagnosed DLG4 SHINE families navigate through the available resources and important process of registration. Start the process or pick-up where you left of by clicking on a step below.
