Join us for an extraordinary two-day event that promises to enlighten and inspire! 
As our patient population and community grows, we are excited to offer a unique opportunity for learning and connection. Mark your calendars for Thursday, July 17th, for our “Science Day” where you will hear updates directly from researchers, clinicians, and experts in the field. Then, on Friday, July 18th, experience the warmth of “Family Day,” where parents, caregivers, and family members and friends come together to share stories, build bonds, and create lasting memories. Don’t miss out on this chance to engage with knowledge and community!
 
TENTATIVE SCHEDULE (Full Agenda to Follow):
 
Wednesday, July 16th - Conference Welcome Kick-off:

• Evening reception from 5:30 PM to 7:30 PM in hotel lobby

 
Thursday, July 17th – Research Day:

• Presentations from current DLG4 SHINE researchers and updates on ongoing projects.

• Mixer/Dinner with researchers and presenters for families to ask questions.  

   

Friday July 18th – Family Day:
A chance to review scientific and research insights in an accessible way, followed by family-focused experiences.

• Helping the DLG4 SHINE Foundation identify what matters most to families

• Blood draw providing families the opportunity to be included in future studies

• Opportunity for siblings to participate in a session tailored just for them

• Family Outing to bond with each other

• An evening Dance Party to feature our DLG4 SHINEing STARs

 
This special two-day conference will bring together individuals with DLG4 SHINE, their families, researchers, and healthcare professionals to discuss the latest advancements, research, and community support.
 
If you fundraise $1,000 by April 15th and let us know, we will waive and return your registration fee (details to follow on registration).
 
RESERVE YOUR HOTEL ACCOMODATIONS AT OUR DISCOUNTED GROUP RATE