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Spreading Awareness For SHINE Syndrome on Talk Pittsburgh For Rare Disease Day 2025

As a way to create awareness for SHINE Syndrome and our SHINEing Stars on Rare Disease Day 2025, DLG4 SHINE Foundation co-President, Tim Stuart and his daughter, Lilia and Director of Marketing, Dana Opar and her daughter, Eden participated in a segment on Talk Pittsburgh in Pittsburgh, Pennsylvania. This opportunity allowed them to discuss the symptoms of our rare disease, how it affects our loved ones, and our ongoing research to identify possible treatments.

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