We're reaching out to our U.S.-based families and asking them to sign up for Citizen Health to help power digital natural history studies for our community!

By participating, you will be part of something truly meaningful: a chance to contribute to vital research that could change the future of care for so many families like ours.

Our goal is to have at least 25 new patient families join by November 30 so that we can generate our first core natural history dataset with Citizen!

Sign up here: www.citizen.health/partners/shine-syndrome