Learn more about this rare disease, how it affects our families, and how we're helping to find treatment.
Urge Your Senators to Reject Medicaid Policies That Will Harm the Rare Disease Community
The rare disease community needs our help! If you have not already heard, the President’s budget reconciliation legislation H.R.1 - One Big Beautiful Bill Act will cut Medicaid by $715 billion over the next 10 years. This will have devastating effects on the rare disease community.
What can we do? Tell our Senators NOT to support this bill! It’s easy … just follow these 4 steps:
Click here: https://everylifefoundation.org/rare-advocates/take-action/
Click on “EveryLife Foundation Asks Advocates to Urge Their Senators to Reject Medicaid Policies That Will Harm the Rare Disease Community”
Enter your information in the five fields: first name, last name, address, email, phone
Clicking “Sign Up” will send the letter directly to your local Senators
When? Right now. The Senate is expected to pass the bill before July 1 and may even bypass the committee process to rush it through.
What else can we do? Call your Senators. Remember – they work for YOU!!
Tell them to vote NO on this bill and that cutting Medicaid funding to our vulnerable population is intolerable!
