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OVERVIEW OF THE 2025 GIVING TUESDAY FUNDRAISER

We are pleased to report on the investments from our generous donors during the 2025 Giving Tuesday fundraising campaign which helped accelerate research, expand family support, and push forward multiple therapeutic pathways for children with DLG4 SHINE Syndrome. 

OUR GOALS

  1. Fund the Johns Hopkins mRNA-based novel therapy study

  2. Support local family knowledge‑sharing events

  3. Advance clinical trials and drug‑screening work

  4. Launch Phase Two of the Biomarker Study

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View and download our Goals report and our Total Fundraised report  

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EY2025 Impact At A Glance.png

Together, we can make an even bigger impact.

THANK YOU FOR YOUR SUPPORT!

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