Learn more about this rare disease, how it affects our families, and how we're helping to find treatment.
The DLG4 SHINE Foundation Town Hall
The annual DLG4 SHINE Foundation Town Hall meeting is held to share important updates and discuss questions and concerns raised by community members. If you have a question, topic, or idea you'd like addressed during this year's event, we invite you to share it below. Your input helps us better understand the interests and needs of our community and allows us to create a more valuable experience for everyone.
While we may not be able to address every submission during the event, all responses will be reviewed and considered as we prepare our discussion.
We appreciate your participation and thank you for helping us make this event as impactful as possible. We hope you can join us on November 1, 2026 at 3:00 PM (EST).