Life with Lilianna has its challenges but without her our family would not be complete! Lilianna has two older brothers and makes it a point to be involved in every wrestling match there is.

She keeps her brothers in check as well as the rest of the household, including our golden doodle. Lilianna loves to sing, dance, swim, ride horses, being around people and having a conversation with just about anyone. Lilianna struggles with costumes of any kind, loud noises, sudden changes to her routine and anxiety. This leads to repeated questions and “fitting in” with her neuro typical peers.

My hope is for a treatment that will allow Lilianna to experience a life full of more possibilities and less restrictions due to her disability, and lastly relief from all her symptoms so she is able to connect and verbalize all that her mind and body are feeling.