Liliana
Liliana has an infectious, bright energy. She has never met a stranger, and will offer hugs (or “uggs” as she pronounces it), to anyone willing. Liliana started therapy at 4 months, was diagnosed with global developmental delay at 9 months, and now we stay busy with multiple therapy sessions weekly at almost 3. We once wondered if she would ever walk or talk, but she has since proven she may do most things on her own time. She started walking at 27 months, and now we often wish she would be still, for even a moment. She loves her duplo blocks, music, and all things movement. At home she is almost constantly talking, at a pace of a mile a minute that goes along with everything Liliana. She so wants to do everything her peers and big sister do, but struggles with hypotonia, inattention, motor planning and balance. She has taught us to be patient, and we have learned to reevaluate what’s important in our lives. At such a young age, there is so much about her future that remains unknown. We take comfort in knowing her social, outgoing soul will carry her far, and find hope in research that may one day benefit her and other DLG4 families.