Lachlan is currently 8 years old, but with the independent skill level & understanding of a 12-18 month old. He He is nonverbal and has diagnosis’ of Autism, SHINE/DLG4 related synaptopathy, ESES epilepsy, ADHD, OCD & PICA. While life is sure challenging for him, he is the happiest, sweetest & most affectionate boy. He loves snuggles, kisses, hugs & tickles. He is also a massive sensory seeker! He loves busy/loud places, loves concerts/loud music in general & one of his favorite chaotic places are indoor trampoline parks with craziness of kids screaming/running around/flashing lights/loud music! He also loves swinging, jumping on trampolines, books, music, going out to eat/eating a wide range of foods, & his favorite place to be is the beach/ocean! His struggles are communication, mood swings, falling asleep/sleeping through the night, sitting still (he is constantly moving!), learning by imitation & fine/gross motor skills. Learning more about & understanding his genetic disorder, finding answers after years & years of searching & working with our new neurologist/epileptologist brings me hope. This foundation & gene therapy also brings me huge hope!!! Lachy was diagnosed in early 2020 & at the time I was told nothing was known and it was called “DLG4 Genetic Disorder”. In 3 years – the amount of knowledge and progress with this disorder gives me so much hope!!! So very happy with how informative, transparent & accessible this foundation is to parents like myself!!