Alex is almost six years old. He is non-verbal—or more accurately, minimally verbal, using just a few words. He faces challenges with fine motor skills and intellectual disabilities. Before his fourth birthday, Alex was diagnosed with autism. However, his case has puzzled many doctors, as he doesn’t exhibit the typical signs—they describe his autism as atypical. Alex is extremely social, yet he experiences global developmental delays.

He still needs assistance with everyday activities like feeding and dressing. He is not yet potty trained and has severe ADHD, which can make life very challenging for the entire family. Public outings are particularly difficult.

Alex also has OCD and is especially triggered by doors. He has a strong need to open and close them repeatedly and is fascinated with elevator buttons. He is constantly on the move, which makes it hard to go to places like church or crowded public areas. Unfortunately, his behavior is often misunderstood, and people assume he’s misbehaving. We are sometimes asked to leave or to make him stop acting a certain way.

Despite these challenges, Alex has many things he loves. He enjoys movement and traveling—he’s happiest in the car, on a boat, in a stroller, or on a plane. He’s a great traveler. Recently, he began using PECS (Picture Exchange Communication System) to communicate, and he also has an iPod with a communication app, though he’s currently less interested in using it.

Caring for Alex is exhausting at times because he needs support with everything—from brushing his teeth and washing to eating and playing. He doesn’t like being alone and craves constant attention. He has no sense of danger and tends to trust everyone, which adds to the concerns for his safety.

Alex also struggles with balance and coordination. His gross motor skills limit his ability to enjoy activities like ball games, bike riding, or many of the outdoor experiences that typical children his age take part in.