DLG4 SHINE Syndrome Achieves Critical Milestone with Assignment of ICD Code

In a landmark advancement for the rare disease community, DLG4-related Synaptopathy has officially been assigned an International Classification of Diseases (ICD) code.

The newly assigned ICD-10 code will be included in the upcoming update to 2026 ICD-10 CM and is expected to be adopted by healthcare systems globally on October 1, 2025. Read Full Press Release