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Learn more about this rare disease, how it affects our families, and how we're helping to find treatment.
2025 DLG4 SHINE Research & Family Conference Videos
The 2025 DLG4 SHINE Scientific & Family Conference was packed with updates on current and previous projects as well as a glimpse at new potenail projects and potentially viable treatment options. Whether you attended the conference in-person, virtually, or are viewing the videos for the first time, we hope that you find the information valuable to understanding how our work with researchers is moving research forward for our loved ones.
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